Today starts my third chemo treatment, and the first Link of Hope from the amazing Vonk family! The verse they chose to kick things off was Deuteronomy 3:16, which says:
6 Be strong and courageous. Do not be afraid or terrified because of them, for the Lord your God goes with you; he will never leave you nor forsake you.”
Perfect verse! I know for sure that God has been with me every single step of this process, and it’s what’s supported me and helped keep my positive attitude. Thanks, Vonks, for reminding us how God can help with our walk, and knowing that he’ll always be there for us! And isn’t that the absolute cutest writing on the link?! Thanks, Benjamin!
And thank you to Hannah Mason for bringing me a Boba Tea! I can enjoy it even more now that I don’t have to worry about the neuropathy.
So, today’s chemo visit will be bit different. Here’s the blow-by-blow:
11:45AM : Done! Got my pump connected and am out the door! Today was the easiest one so far! Of course it helps I didn’t have the Oxaliplatin , which I don’t mind, since it also means I won’t have do deal with neuropathy this time. And while they’ll want to get me back on it sooner than later, it won’t hurt the overall efficacy of my treatment. Praise God!
9:50AM : Started the 90 minutes of Leucovorin.
9:30AM : Got hooked up to the IV. Today will be a much shorter session. Since there is no Oxaliplatin, there are also no pre-meds. It’s basically a Sodium Chloride IV for a bit, Leucovorin for 90 minutes, a 5-FU push, and then I get hooked up to the pump! It’ll save me a couple hours for sure. And, no chance of neuropathy to increase, because I won’t have the drug coursing through my veins.
8:45AMish : Met with Karen, who is Dr. Rosenberg’s PA. Talked with her for a long time, which is one of the things I like about this place. They’re never rushed, and always have time to answer every question you have. We talked about my recent wound, which my surgeon believes is pyoderma (related to my old ulcerative colitis). Because it’s so nasty, and because they want to give it the best chance to heal, we’re off the hthis time! This is “good,” because it’s the nastiest of the drugs, and it’s the one that causes the neuropathy. However, it’s also very effective at what it does, so we don’t want to stay off it too long. But, it’ll give my body a break and a better chance for my wound to heal. And, ultimately, many (close to most) patients end up on a reduced level of Oxaliplatin during the course of their treatment because of the side effects. We also discussed the use of Glutamine to help prevent the effects of neuropathy. She said they’ve done studies with it, and not found it to be all that effective, but that it wouldn’t hurt anything if I tried it. I found this study that suggests it does work, and since it’s an essential amino acid, I’m gonna give it a go anyway. I’m sure it’ll help something!
8:15AM : Got my vitals taken, got my port tapped and my blood drawn.
8:00AM : Arrived, checked in. Way too early in my book!