Thwip?!

Thwip…that’s the sound Spider-Man makes when he slings his web at whichever villain he happens to be fighting. And that’s the sound I was hoping to be making after my first radiation treatment today, assuming that a spider crossed the radiation beam and then bit me. But, alas…I’m still the same old Mark this evening! ๐Ÿ˜‰

Today was the first of twenty-five radiation treatments that I will undergo to once and for all eradicate this cancer. And, to be honest, the whole thing was pretty uneventful! Basically, I lie on the table holding a “donut” under my chin to keep my arms and elbows by my side so they don’t get hit with radiation. Then, they line up my super tiny tattoos with the lasers for the initial positioning. After that, they take some x-rays (with lower than normal radiation) so they can fine tune my position on the table. Lastly, to wrap things up, they spin the machine around me a couple times while firing some radiation into a specific part of my body (but attacking it from 360 degrees), and then I’m done! I literally feel nothing at all during the entire process, which lasts less than 15 minutes. A pretty routine procedure, it seems!

Thus far, the only effects I’ve felt is some mild nausea as I was driving to having dinner with my mom and brother. Aside from that…it’s as though I didn’t do anything today at all. Much, much better than chemo!

One last note: I know that sometimes I tend to maybe trivialize the things I’m going through, their effects, and what is and isn’t important with respect to it. Please note that’s just my take on the whole thing. For others going through radiation and chemo, things are much, much harder, and for some, much easier. For some, loosing all their hair like I did is a life-changing experience, while for me, it was a relief from having to shave! But, any way you look at it, these procedures are intense, dangerous, and often leave long lasting effects. I wouldn’t wish any of this stuff on anybody…ever. If you know of anybody going through radiation, chemo, or dealing with cancer in general, please pray on how you can offer them assistance. You’d be amazed at what a kind word, card, or some other act of kindness can mean. I should know…we’ve had TONS of support during this whole process, and it makes all the difference!

Well, that’s pretty much it! If things change with respect to side effects or anything else, I’ll be sure to write it up. My suspicion is that some of this stuff is cumulative, so it may be a while before it hits. But, my oncologist (in particular, the chemo side of the house) has offered me hydration and whatever anti-nausea drugs I may need to get through this. So, I think I’ll be in good shape!

Many thanks for all the prayers (especially for my amazing family), well wishes, thoughts, and general interest in what I’m going through. I love you all!

Mark

Not Quite Yet…

For those of you waiting for an update on how radiation went, turns out today was just x-rays for some reason. I’m not sure why. Tomorrow the treatment actually begins (including daily x-rays). I’ll post tomorrow on how things went!

In the meantime, enjoy some images from the El Conquistador July 4th fireworks show last night! Captured from the Linda Vista Trail.

Hoping for Super Powers!

There’s a long list of Sci-Fi and comic book characters who have gotten their powers as a result of accidental exposure to radiation: The Incredible Hulk, Daredevil, Spider Man, all of The Fantastic Four, and The Flash, to name a few. Their powers range from super strength (Hulk), to spider-like abilities (Spider Man), to super speed (Flash) and the ability to turn invisible (Invisible Woman of the Fantastic Four). Lots of average people have gained some pretty incredible powers as a result of exposure to radiation!

Origin of The Incredible Hulk

Today I visited Arizona Oncology for my radiation simulation, and I have to say, I’m quite excited about the possibility of gaining super powers! In today’s visit, they gave me a CT Scan to ensure they know exactly where all the organs in my target area (pelvis) are, and then gave me a series of small tattoos to ensure they line me up correctly when it comes times for the radiation. They want to ensure the radiation goes exactly where they want it, and to not spill over into other organs. Before all that started, I got to watch an interesting video about the whole procedure, possible side effects, and why it’s a good therapy. It was pretty informative.

Actual treatments start on July 5th…I’m going to take next week to do a final visit to Houston for work before I can’t go anywhere for five weeks. Treatments will be every day for five weeks, and will last about 15-20 minutes. From what I could tell in the video, the bulk of that time is spent getting situated in the machine. The actual radiation will be a very small percentage of the time. The radiation itself will be a series of beams that are focused on the area where my last cancer was found. The premise is thatย  the DNA of the cancer cells…if there are any…will be destroyed, thus making it impossible for the cells to replicate. The same will be true of any “good” cells that are in the area as well, but, apparently they have a much easier time repairing themselves than cancer cells do in the same situation. So, the cancer cells die and go away, and the good cells repair themselves and reproduce. Easy peasy!

Possible side effects: nausea, diarrhea, fatigue, and skin irritation. Not too bad!

Now, since I’m not getting the same level of radiation that Bruce Banner did which turned him into the Hulk, it’s possible my super powers may be a bit more limited. But, consider this: Peter Parker got bit by a tiny spider that happened to get irradiated. So, if we think of the machine at the office as just a larger, but “targeted” spider….who knows what the possibilities could be! And you never know…maybe a spider WILL cross the beams, take a bite out of me, and then IT’S ON!

I’ll let everybody know how things go after my first session!

Have a great week!

Mark

All Clear…Again!

Hello!

I finished my second round of chemo a couple weeks ago…yay! And this past week I had my post-chemo CT Scan, and everything came back clear! Now, to be honest, knowing that I went into chemo with everything clear as a result of the surgery, it would have been super disappointing if they found anything. But, they didn’t so that’s a good thing, knowing how aggressive my cancer has been in the past.

Next up is radiation. Michelle and I meet with the radiation oncologist on Monday to discuss the plan. I had every intention of trying to convince them to postpone it until sometime in August, but my regular oncologist has convinced me otherwise, and we’re shooting for the week of July 4th to start. It’ll be for five weeks, five times a week, for 15 minute sessions. I’ll literally spend more time driving there and back then actually getting treatment!

Lost lots of hair, all over my body, with this last round of chemo. Here’s a shot of how my head ended up:

I can easily say that his round of chemo was one of the worst things I’ve been through, and I’m intensely glad that it’s over. The family and I very much appreciate all the thoughts, prayers, support, and everything that so many people provided during this time. And, again, super props go out to my amazing family for supporting me and dealing with my crazy mood swings and need for naps during chemo. They have been through as much as I have during this journey, and I love them so much!

Have a great day!

Mark

The Final Stretch

Hello!

Last week completed my third of four chemo treatments, so I’m 75% of the way done! One more in two weeks and then I can hopefully, forever, close this chemo chapter of my life.

Not gonna lie to you…it’s been getting worse and worse with each treatment. The hair loss seems to have stabilized, and is starting to grow back in, which, to be honest, I was enjoying it being gone! But, everything else gets worse with each treatment. The fatigue, lack of energy, shaky muscles, and dark places my mind ends up continue to get the best of me during treatment week and the 4-5 days after the last infusion. To be blunt, it completely, totally sucks, and I’m tired of the toll it’s taking on my mind, body and family. I would not wish this on anybody, ever.

Today I’m feeling like I’m starting to recover from the infusion finally, so that’s keeping me a bit optimistic. We’ll get this last one done at the end of May, and move on…to radiation! Fortunately, I’m told it’s nothing like chemo. Let’s hope.

I hope everybody has a great week…thank you for the continued prayers, thoughts and support…and I’ll let you know how things progress!

Mark

Half-Way!

Hello!

Today ended my second cycle, marking the half-way point to being done with this craziness! So far, not much is different than expected. The fatigue hits me pretty hard during the end of the week, and my appetite is pretty much gone, but aside from that, all is well. Except, my hair situation!

No Hair!But, amazingly, I still have my eyebrows! So I’m very grateful for that! Using lots, and lots of sunscreen these days! By the way, that’s only a difference of 8 days!

I hope everybody has an amazing weekend!

Mark

And There It Goes…

…my hair, that is!

Hello! Last week I started loosing my hair. It pretty much started exactly when my oncologist said it would (Day 17). I first noticed it when I tried pulling some from my head it it worked! Fortunately, I keep my head pretty closely shaved, but you can for sure tell it’s starting to go on its own. I’m honestly starting to look like I have a case of scurvy (you can look…seriously…I don’t mind). But, there is an upside to all this! I’ve noticed that (1) the haircut I got a few weeks back is lasting way longer than usual, and (2) I’m not having to shave as often because it’s not growing back as quickly as it usually does. To me, those are two bonus items that make it all worth it! The one downside is that Alex is constantly trying to mess with my eyebrows…the only area that I don’t really want to loose!

This week I start my second cycle of chemo. By all accounts, this week should be worse than my first week. So, if you try to get in contact with me, and I’m slow to respond, I’m probably just taking a nap!

I’d like to ask everybody a favor. If you don’t mind, I’d love it if you shifted your thoughts and prayers a few different directions this week. First, for Samantha, that she has an amazing week and that she is able to be at school every single day, feeling absolutely wonderful, loved, and being able to do all the things a teenager should be doing! Second, for my brother, Scott, who is facing some health issues himself. That his insurance approves the necessary tests quickly, and that they yield the results that help define the perfect treatment regime to help get him healthy again. Third, for Michelle, that she feels amazing this week as well, that she feels rested, and that she gets a break from all the medical junk that she has to deal with on a weekly basis. And finally, for Alex, that he doesn’t get lost in the shuffle, that he feels empowered in every aspect of his life, that he has laser like focus on the things that are important in his day, and that he knows he’s loved tremendously!

I hope everybody has an amazing, healthy week! We can’t thank you enough for the continued prayers, thoughts, gift cards, and general well wishes. You are all an amazing family to us!

Mark

Week One…Done!

Hello!

Well, chemo week one of twelve is now history! Overall, I’m feeling super fatigued, weak, bloated (gained 5 pounds of what better be fluids!), but not a single bit nauseous. I think I’m basically experiencing the traditional effects of the treatment, so I’m going to say that all is going as expected.

I met with my radiation oncologist today to discuss the delay in getting that started. He said that this sort of chemo would heighten the effects of the radiation in such a way that it would not be good for my body at all. He doesn’t know of any literature that suggests doing the chemo and radiation in tandem was a good idea. I was fully prepared to convince him otherwise, that I could handle them both, but I decided to heed is professional advice. So, we’ll look at starting it up about 6-8 weeks after chemo is done (probably in July).

We want to thank everybody who visited us, prayed for us, thought about us, and did some very cool things for us! Thank you for the visits at chemo, the food brought there and to our home, the gift certificates, the offers for assistance (rides, etc), and to the person or persons who did that thing for us at AZ Oncology…we can’t thank you enough! We love you all, and are so blessed to be able to call you our friends and family!

While it has been a tough week, we’ve seen God’s hand in quite a bit of it. One of Samantha’s doctors called out of the blue (literally minutes after a prayer request was sent) and set in motion some things that would otherwise take months to get done. I’m tolerating my treatment as well as expected, and we’re about to celebrate Easter!

We hope everybody has an amazing Easter weekend!

Off to take a nap! ๐Ÿ˜‰

Mark

Day Two Update

Hello,

Thought I’d post a quick Day Two update on my chemo! Yesterday, Day 1 (obviously!), I received the full gauntlet of “Carboplatin + Etoposide” as was scheduled. The whole thing was kind of interesting. When I arrived at the chemo area, the nurses had to do a ton of research to ensure that I was getting the treatment they thought I should! The reason for that is because the treatment I’m getting is not typical for colon cancer patients, but more for lung cancer patients. After some very thorough research, they started my day off with three different anti-nausea drugs! I’ll admit that had me a bit concerned. But, after all was said and done, I finished a very long day feeling tired but not nauseous. No neuropathy (which is to be expected), and just some fatigue. So far so good!

Today I received just the Etoposide meds, and no anti-nausea drugs. The day was much shorted, and I’m doing great!

Tomorrow is another Etoposide treatment, then Neulasta on Friday, and then I’m off cycle for two weeks.

They did say that I would loose hair this time around. But, that’s not really an issue for me.

Thank you very much to those who have visited and/or brought me and the family food! You are all amazing friends! And thank you to my awesome family for traveling this road with me with so much strength and love. You guys are the best!

Have a great day!

Mark

Chemo, Take Two

Hello,

Last week Michelle and I met with Dr. Rosenberg to discuss my chemo plans. I knew something was afoot because earlier that day my radiation guy’s assistant called and left me a message letting me know that my planning session in two weeks was cancelled, but that he still wanted to see me. I was hoping that meant no radiation at all! But, that was not the case.

Michelle and I spent a good hour with Dr. Rosenberg listening to what he had to say, and peppering him with questions. The short of it is this:

  • I have/had a “unique” form of colon cancer that doesn’t act like traditional colon cancer. He basically figured this out when he sent my tumors from the two surgeries back to pathology for more analysis, and got some information he didn’t have before. The good news is that they were the same both times. The “bad” news is, that because they don’t act like traditional colon cancer, my first chemo treatment – the 5FU minus the Oxaliplatin (if you recall it gave me neuropathy) – isn’t very effective against what I have/had.
  • “My” cancer acts more like small cell cancer, which is typically found in areas like the lungs. That being the case, the chemotherapy that we’re going to be using is called “Carboplatin + Etoposide,” and it has a 50 – 85% effective rate against small cell cancer.
  • However…despite the fact that it is so effective against “traditional” small cell cancer, because my situation is unique, the actual cure percentage for people like me is less understood. But, he’s estimating it at better than 50% for sure (of course, that’s just saying it may or may not!).
  • The side effects I’ll likely experience this round are fatigue (worse than the first time), hair loss, and a decrease in my red/white blood cell counts, as well as platelets. We’ll be monitoring those closely. It’s unlikely there will be any neuropathy or cold intolerance this time, and nausea isn’t a problem because of the anti-nausea drugs they give at the same time.
  • I’ll be doing four three week cycles, for a total of 12 weeks of chemo. It will be one week on, with two weeks off. The “on” week will entail three visits to Arizona Oncology for chemo drugs, and a fourth visit for a shot of Neulasta, which helps keep my white blood cell counts up. So, a Monday thru Thursday regimen every three weeks.
  • Here’s the kicker – after chemo is done, they still want me to do radiation. That will be five weeks of radiation every day (Monday – Friday). Fortunately it’s only like a 15 minute session, but I’ll spend more time driving there than actually getting treatment! We’ll probably start this sometime in June or July.

That, then, is everything in a nutshell. I start my treatment next Tuesday, 3/22. I was going to start on Monday, but it’s Michelle and my anniversary, so we figured we’d go ahead and celebrate while we can!

I’m not planning on doing a blow-by-blow account of my experience like I did last time, unless I feel that what I have to say could potentially help somebody else going through the same thing. So, the old saying, “no news is good news” will be in play during the course of my treatment. If you don’t hear anything, you can assume that all is well!

Our family thanks for you for all the support everybody has given us as we continue to battle this and the many other health issues we’re experiencing! Your thoughts, prayers, visits, gift cards, meals, rides for the kids, and everything else means a ton to us! We truly love you all!

Have an amazing week!

Mark